Agenda item

To consider the report of the Leeds Palliative Care Network that provides an overview of the work of the network, including the Dying Matters programme.

The Leeds Palliative Care Network submitted a report that provided an overview of the work of the network, including the Dying Matters programme.

The following was appended to the report:

-  Leeds Palliative and End of Life Care Framework for Adults

-  Leeds Palliative and End of Life Care Draft Outcomes Framework

The following were in attendance:

-  Dr Mike Stockton, Chair of the Leeds Palliative Care Network

-  Lucy Jackson, Chief Officer, Public Health, Leeds City Council

-  Diane Boyne, Leed Pallative Care Network Manager at St. Gemma's Hospice

Members were provided with a presentation, which highlighted the following:

·  Access issues, in Leeds and nationally;

·  Key milestones in 2018/19;

·  Draft outcomes and priorities for the future.

Members discussed a number of matters, including:

·  Opportunity to strengthen the framework through an  all age approach, to include children and young people and challenges around transitions and engaging them on talking about palliative care and end of life as key influences in their homes and communities;

·  The need for consideration of economic impact in line with the identified projections for future need;

·  The need for better integration between hospitals and hospices to ensure early identification of need and a focus on ‘Leeds Left Shift’ in the framework;

·  Support for the think family approach around palliative and end of life care particularly in relation to carers and bereavement services;

·  The need for consideration of how Leeds can better resource community palliative care in line with the Leeds Left Shift, which is currently significantly dependent on the third sector explored through the Integrated Commissioning Executive (ICE).

·  The need for consideration of how the city provides care at home utilising frontline staff through a more holistic approach to care.

·  The importance of better understanding and addressing why lower proportions of mixed and black ethnic groups have a preferred place of death recorded and die in their preferred place of death when compared to other ethnic groups.

·  The importance of better understanding and addressing the linkages of areas experiencing higher levels of deprivation that have a lower proportion of people dying in their preferred place of death.

·  The need for the health and care system to challenge itself in reducing the inequality gaps highlighted in the Health Needs Assessment.

·  Suggestions for further consideration of the quality of life of those living in poverty and who are homeless in relation to palliative and end of life care. Representatives present sought more support with data blockages, to enable them to identify the needs are different populations.  The Chair suggested that a session be held focused on reducing inequalities in end of life care.

RESOLVED –

a)  To note the breadth of work driven by the Leeds Palliative Care Network including the work of the Dying Matters Partnership;

b)  To note the Board’s recognition of people receiving palliative care and those at end of life as a key priority population in city plans;

c)  To note the Board’s comments on the draft population level outcomes for people at end of life and draft Leeds Palliative and End of Life Framework.